My first treatment of Taxol and Avastin went smoothly, and LONG. It took about 6 hours to get the whole infusion. The amount of Avastin that I get each time will decrease, so the time it takes to get the infusions will go down as well each time. The new arm port worked well, it was just very tender and swollen from it only having been put in 5 days before chemo. I had forgotten to ask Cherise for some EMLA cream to put on an hour or so before so that my skin could be numbed up for the insertion of the needle, so I had to put up with that not so fun poke. My dad took the day off of work to take me and to be there with me. He was a trooper. My dad is not a hospital/doctor office kind of guy, so it meant a lot to me that he was there with me.
As for side effects, they are all too similar to last time. There's the restless leg syndrome from the decadron, the horrible bone pain from the neulasta shot, and I'm trying to combat the metallic taste in my mouth with some special toothpaste and mouthwash that the nurses gave me. So far I haven't experienced any nausea, which I am very grateful for. The nurse would not give me a prescription for Ativan, which was my life saver last time through chemo for nausea. She would only give me a prescription for compazine, which just doesn't work for me.
Thanks to everyone who has done so much for me these last few days. Meals, cards, flowers, babysitting, visiting me, etc. What a support system!!! Love you all!
Thursday, April 3, 2008
Friday, March 28, 2008
Another Battle...
Ok, so I've been getting a lot of flack from family members who are wondering when I am finally going to update my blog. To tell you the truth, I just haven't had the emotional strength to do it. My life has been turned upside down once again. I had a CT scan done in February to check out some damage that had been done to my right lung during radiation. The results were never sent to my oncologist so it wasn't until a few weeks later when I went to go see my surgeon about reconstruction that she looked up the scan and told me the news that my cancer is back in my lung and in the lymph nodes underneath my heart. We met with my oncologist the next day and he ordered me a bunch of tests to have done in two weeks. I had a blood test, a PET/CT scan, a MRI on my brain, and a CT guided biopsy of the biggest tumor they could find on my lung. There is no cancer anywhere else in my body right now, but now we do know that cancer is in my blood stream, so there is no way for me to ever be "cured." I had a port (my third) put into my left arm yesterday and I am set to begin chemo on Tuesday. Back to being pumped full of poison and steroids, feeling like crap, and losing my hair. Back to the constant constipation, not being able to sleep, and the lovely taste of metal in my mouth constantly. Back to numb hands and feet, Neulasta shots, and a second trip through menopause. Can't wait! I'll keep you all updated.
Monday, February 18, 2008
Tuesday, January 29, 2008
Did you miss me?
I've been away from the blogging world for a little while. We survived the holidays and are good and healthy. We recently spent a week in Utah and had a blast. I couldn't get over how cold it was. I don't remember it being so cold during the four years that I lived there. We stayed at my brother's house in Kaysville. They promised us great snow and fun times, and that's what we got. Scott and Hannah wanted to go skiing, but there were frostbite warnings because it was so cold. Maybe next trip. We played in the snow, visited Temple Square, went ice skating, visited my Alma Mater (BYU), and spent time with family.
This was what Aaron thought of the snow.
She had a blast sledding and tubing down the hill in my brother's back yard. Christian, Lauren and Michaela, thank you for being so patient with her.
Aaron turned 18 months last week.
To make a long story short, he does not enjoy the nursery.
And on a final note...
Last night I finally finished the Eclipse novel. I doubt that I will ever find anyone in a novel who can make me swoon as much as Mr. Darcy in Pride and Prejudice, but Edward (sigh) is in a close second. I am looking forward to reading about what the future holds for Edward and Bella in the next novel--but that won't be coming out until the fall. I have finally finished the seemingly never-ending stack of books that were given to me by friends and family when I first started chemo, so I am looking for new things to read. If you have any suggestions, let me know.Friday, December 21, 2007
My Brave Boy
AJ's surgery went great! We got to St. Joseph hospital at 5:15 am and they immediately took us back to a pre-op room. Aaron got to sit in a hospital crib and play with lots of toys while we met the anesthesiologist. We changed him into his hospital gown and the nurse took his temperature and put his id tags on his ankle. He was so happy and being so good and I felt so bad that he had no clue what was about to happen to him. At 5:50 am, the OR nurse came and we said goodbye to him and she wisked him away. Poor guy, we could hear him screaming all the way down the hall. Not even ten minutes went by and a nurse came and got us from the waiting room. We got to Aaron just as he was waking up. Yikes! He was screaming and trying to climb out of this basinet thing that they had him in. Scott grabbed him and we went into this little room where they had rocking chairs and a tv. We just held Aaron and let him scream till he finally opened his eyes and realized that he was with mom and dad and that he was fine. One of the nurses gave him some graham crackers and a teddy bear. Dr. Camilon said that Aaron's ears had tons of fluid in them and that the fluid was very thick and that he should start saying lots of words soon. Aaron fell asleep on the way home and since he woke up he has been his usual sweet happy self. You'd never know that he'd had surgery 12 hours ago!
Tuesday, December 18, 2007
Update
I want to let everyone know that I had my checkup today with my oncologist. My PET scan results showed my body is clear of cancer. HOORAY!! My awful year of chemotherapy, surgery, and radiation paid off. Thank you for all of your prayers and support. I am definitely going to have a much better Christmas this year than I did last year. We found out last week that Aaron will be having tubes placed in his ears. Aaron has had fluid behind his ear drums for about 6 months straight now because that area is kinked and cannot drain the fluid. Scott had this same problem when he was Aaron's age, so I guess it is genetic. The poor guy has been sick so much during his little 16 month old life, so we are hoping that this will solve a lot of his problems and stop the ear aches. The ENT specialist told me that Aaron will start sleeping better at night and he will start talking because he will finally be able to hear what we are saying. So while you are all sleeping soundly in your beds at 4:30am on Friday, I will be on my way to the hospital to have my sweet little boy put under for a surgery that takes 3 whole minutes. The same day that we found out about Aaron's ear surgery, we found out that Hannah has 8 cavities and needs 2 root canals and 2 caps. Will this family ever be healthy?!? So in 2 weeks, Hannah will be also be put under so that the pediatric dentist can do all he needs to do in one visit. I'll let you know how everything goes.
For family home evening a few weeks ago, we made a gingerbread house. Hannah pretty much did the whole thing by herself. Sadly, this past Saturday, I went to go get something from my bedroom and when I came back, Aaron was on top of the dinning room table. He had demolished the house and was eating the roof.
Monday, December 3, 2007
Asking For Prayers...
Early tomorrow morning I am having a PET/CT scan to see if my cancer has come back and/or if it has spread to any other parts of my body. I probably won't get the results of the scan until I see my oncologist on Dec. 18th, but I will let you all know once I get the results. I am just asking for eveyone's prayers and good thoughts that the results will show that I am finally cancer free. I hope that you are all having a wonderful holiday season.
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